Showing posts with label GI problems. Show all posts
Showing posts with label GI problems. Show all posts

Thursday, August 20, 2015

Reflecting on Anxiety & IBS. Or: IBS woes (not gross or TMI/cringe-worthy! Promise!)

Stress causes anxiety. Anxiety can affect IBS. 

I am going to share with you that I suffer from anxiety. I realize there is still a stigma attached to mental health issues but I think it's important that more people actually talk about it to destigmatize the subject.
"Anxiety disorders are the most common mental illness in the U.S., affecting 40 million adults in the United States age 18 and older, or 18% of the population." (source).
40 million people is A LOT of people. To give you an idea of how many that is: 17% of the population of the US is black (source). There are more people suffering from anxiety disorders than there are black people in America.

I have been diagnosed with Generalized Anxiety Disorder, Panic Disorder and most recently, ADD (now commonly known as ADHD - but hyperactivity has NEVER been an issue for me, just the opposite. Although my brain is definitely hyperactive, my body is more lethargic.) I take medicine to manage my anxiety as well as learned coping skills. It is a never ending struggle to manage anxiety.

Regarding stress/anxiety & IBS

."If you do diagnostic interviews, what you find is that about 60% of IBS patients will meet the criteria for one or more psychiatric disorders," says Edward Blanchard, PhD, professor of psychology at the State University of New York at Albany. (source: WebMD)
There is no direct link that definitively states anxiety causes IBS, it's more that a high percentage of people who suffer from IBS also suffer from anxiety. They are linked but not causal. I find this fascinating as someone who has struggled with anxiety for years and only recently have been plagued by IBS.


My personal experience with IBS


My IBS has taken over my life since it first manifested in mid-November of 2014. I have had to stop searching for a steady job, I had to stop taking Krav Maga classes & exercising. I have become almost completely housebound. I am tethered to the toilet as I like to say. This situation has lead me to become extremely isolated and to be frank, lonely.

To give you an idea of what my life is like. Here's a rundown of my day:

During the night, I got up around 4 am & went to the bathroom. Then, I woke up this morning at 8:15 am with an urgent need to go to the bathroom (when I say "go to the bathroom", assume I mean number 2. I don't want to gross anyone out so I'm not going into details but unless I specify, assume some sort of bowel movement. Sorry TMI.). I'm writing this blog post around 1 pm & I've gone to the bathroom six times so far today. This is normal for me. This has become my normal.

In general, every day, for at least two hours after I wake up, I can't go anywhere or do anything because I find I have to go to the bathroom frequently and urgently. Like "gotta go, gotta go, gotta go RIGHT NOW." As the day progresses, the bathroom trips tend to become less frequent and far less urgent. I can hold it if I have to when running errands. I try to not to be away from my house or somewhere I'm familiar with the bathroom for longer than two hours. Some days I go all afternoon my daily tally ends up between 10-15 bathroom trips a day. Some days I have four or five hours in a row where I don't have to go at all. The bathroom trips don't start up again until the evening and are less frequent and less urgent.

The trouble is there is no way to predict which type of day I'm going to have. Will today be a good day where after my usual morning tribulations, I'm able to go run errands, go to appointments or have lunch with my parents? Or will it be one of the other ones, where I go to the bathroom at least once an hour all day?

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I may have discussed this in a previous blog post but here is a brief history of the steps I've taken to deal with my IBS

After I saw my first gastroenterologist, he thought my pancreas numbers were a bit high so he put me on Creon, a pancreatic enzyme and to start taking a probiotic. This was in January. He also performed every test under the sun, blood tests, diagnostic tests (colonoscopy, CT scan, etc etc etc). I was then scheduled to see him again in May. MAY! Because he was a specialist, he was booked. After a month or so I decided I needed a second opinion and hoped to find a doctor I could see more frequently. Or at least one who wouldn't make me wait five months between appointments.

I saw my new gastroenterologist and she confirmed the first's diagnosis or Post Infectious IBS. She told me to keep taking Imodium regularly, to stop the Creon as it wasn't doing anything and suggested a cholesterol medicine that was known to, as a side effect, bulk up the stool (sorry, so gross, sorry). I started taking Cholestyramine but it gave me terrible heartburn and I already suffer from GERD. It was unbearable so after two weeks she stopped that medicine and put me on Lomotil, a powerful anti-diarrheal. At first I was taking one pill four times a day to little effect, I then went up to two pills four times a day but that was the maximum allowable dosage and she wasn't really comfortable with my taking that much for a long period of time. After a few weeks, it seemed the Lomotil was helping and that I could go back down to one pill four times a day. Now I take it three times a day, as my doctor has repeatedly suggested trying to take less but I've have been thinking about upping my dosage as I seem to be backsliding and not really getting a handle on my IBS, which is the whole point of these medicines.

Anyway, after being put on the Lomotil, at my next visit, she suggested I take a fiber supplement as another way to hopefully bulk up and then have to "evacuate less frequently" so now I take 2 fiber tablets in the morning and this week I've decided to start taking an additional tablet at bedtime.

Lomotil seems to help. Imodium shuts down my insides the day after I take it, which is odd but that is the pattern I've noticed since I've been tracking my medicine intake and bathroom visits. I still had a really active gut with cramping and occasional gas so my doctor prescribed me Bentyl, which is an anti-spasmodic. 

I've been reluctant to take Imodium regularly anymore because, while going the bathroom frequently is a hassle, I'd rather get it all out of my system rather than have a "shut down" like Imodium tends to produce (even if it is a day late).

I now take the Lomotil and Bently together three times a day. As I've stated I have been considering increasing my Lomotil because I'm so tired of having 12 bathroom trips a day on a regular basis.

Why am I telling you this? I can hear you, "get to the point!" Well, those of you who know me, know I tend to ramble a bit and off-topic tangents made up a lot of my conversations. So deal with it!

Well, life is stressful in general. My life is no more or less stressful than anyone else's other than it is happening to me. And that is what having anxiety or having IBS feels like. Life is happening to you, you are not living it, you are merely surviving. I don't want people to think that every single day is a struggle for me or that I'm also suffering from depression or a general malaise. But lately, IBS has added a serious burden to my coping methods I use to manage my anxiety. That's actually that's one big thing anxiety & IBS have in common - it not something you are magically cured from no matter what drugs you take, it is something you manage. You deal with it. You live with it. It doesn't just go away. It is a factor in your life every day.

With anxiety there are medications and coping methods and modalities individuals use to keep their anxiety from controlling their life. Because when my anxiety is spiking, as I put it, it feels like it is in control, not me. That I am merely reacting instead of acting. And with the IBS, I've been limited in my reactions because I'm housebound a lot of the time.

It feels like a I'm stuck in a hamster wheel, running in circles. My anxiety affects my IBS which in turn affects my anxiety which then affects my IBS. Repeat ad infinitum.

This is my life now.



Sunday, July 19, 2015

IBS med & bathroom log

I have been keeping a medicine/bathroom log regarding my IBS-D. If there is interest I would be willing to share that. Basically I keep track of the medicine that I am taking for my IBS as well as a bathroom log keeping track of how often and what type of stools I am producing.

If this would be of help to anyone I would be willing to share it even though it is intensely private.

Feel free to comment so I can gauge if there's interest.

Saturday, July 18, 2015

A timeline of Post-Infections IBS...

Collection of posts from Tumblr & Facebook about my IBS (TMI warning), TW: Health issues


Posted on Facebook December 5, 2014

  • Entering week four of the stomach bug or GI virus or universe exacting karma on me. So tired of this.



Posted on Facebook December 13, 2014

  • I've decided to ask for a referral for a gastroenterologist. I can't deal with this anymore. I'm so miserable.



Posted on Facebook December 18, 2014

  • Status update on my health: not celiac. One possibility down...



Posted on Tumblr December 19, 2014

Personal Rant
  • So, this has nothing to with Tom Hiddleston or Benedict Cumberbatch or Sherlock or Sherlolly or Star Trek or Loki or any of the things I usually blog about so feel free to ignore, I just need to vent a bit.
  • A bit of TMI to follow:
  • I’ve been sick since mid November. At first I thought it was a horrible stomach bug, but I didn’t have nausea or vomiting, just… other stuff.
  • It’s been over a month & it’s not gone away or gotten any better.
  • I’ve had a bunch of blood work & antibiotics & seen specialists & had procedures & now I’m waiting for results. My blood work shows it’s not celiac. From what I’ve researched, I (in my complete lack of medical knowledge) think it’s ulcerative colitis or inflamed bowel syndrome/disease? I dunno. It could be something else entirely. I have to wait for results. 
  • This has been one of the worst experiences of my life. And I’ve had some doozies in the past.
  • I just want it to be over. I want something, anything, to fix it. I’m so tired of this. I’m so tired. I really can’t take much more of this. But I have no choice but to suffer through & carry on.


Posted on Tumblr December 22, 2014
  • I’m so sick, I can’t even drink wine. I think that’s super unfair. At least if I was drunk, maybe I wouldn’t care about being so fucking sick.


Posted on Facebook December 22 2014
  • People, I appreciate your asking for my wellbeing. I truly do. I love my friends & family. 
  • But please, stop being surprised when I say that I'm not better. I feel horrible enough without having to explain every time about how this process is ongoing. This isn't going to get better soon. The results aren't even back from my tests & procedures. Just wish me well & send me good vibes, thoughts & prayers (please).
  • I'm wicked sick. The end.
  • - I don't mean to complain, well yeah I do, but I'm exhausted from being sick & super short tempered as well. So apologies for my bitchy post.



Posted on Tumblr December 24, 2015
  • Trying to psych myself up to go to a family Xmas Eve get together in a couple of hours.
  • Still ill.
  • Just the idea of putting on a real bra & a nice shirt & jeans & boots is like way too much for me. Never mind putting on a little mascara so I look less drawn & exhausted, & well, ill.
  • If I could go as I’m dressed now, with my long sleeve Patriots Super Bowl Champ (XXXVI - it’s an old, super comfy shirt) t-shirt & my yoga pants & slippers, that would be so much easier. 
  • I might just do that.


Posted on Tumblr December 28. 2015

TMI - health issues & grossness. Sorry not sorry.
  • Opioid medicines cause constipation. Right now, I’d give my left arm for some constipation. It’s been a month & a half of serious GI issues. No answers yet. I’m so done with this.
  • If anyone has any leftover pain meds, I’d love to have them. Seriously.
  • I know nothing will come of this. God knows my docs won’t give me any - & I understand why… truly, people abuse them all the time. But I just want to be constipated for a week & give my butt a break.
  • Sorry for the bitching. I’m just exhausted by this illness.


Posted on Facebook January 2, 2015
  • This is my life right now, (the Bleachers song) I wanna get better. I'm so tired of being ill. And it's not just being sick. It's ill. I'm ill. We use the word 'exhausted' very casually but I am literally exhausted all the time from whatever is plaguing my body.


Posted on Facebook January 15. 2015
  • CAT scan today. Hope to find out what's going on with my insides. Stick a fork in me because I AM DONE.



Posted on Tumblr January 20, 2015

My Health Update
  • My CT scan showed only minor inflammation. My gastroenterologist believes I have post-infectious IBS. We’re adjusting my medicine & seeing how it goes. 


Posted on Tumblr January 21, 2015

I need to vent
  • Quick recap: GI issues since November. Colonoscopy: fine. Blood work: fine. Slight malabsorption indicated. Had CT scan last week, waiting on results, followup with GI doc next week. Taking pancreatic enzyme RX now & probiotics.
  • The Rx gives me a headache. It’s a listed side effect. It also says dizziness which I don’t really have but sometimes I do feel light headed even when I’m sitting down.
  • Almost everyday, my head aches or is all stabby stabby inside. Plus I’m still suffering, especially at night. I am so fed up with this. I need to feel better soon.
  • I’m going crazy.
  • My entire life is on hold. I’m on hiatus. All I do is read (which I love but lately my eyes have become itchy & watery & that makes reading less fun) & go to the bathroom.
  • ETA: I almost wish (but not really, because ugh, this is already awful) I had more symptoms because then it would be easier to figure out what this is. I’ve looked up Ulcerative colitis, IBS, lactose intolerance, gluten intolerance (celiac or non-celiac) & I’m like, nope, that’s not me. Like I’m not foggy headed or bloated or suffering from abdominal cramps or anything other than “intestinal distress”. Yeah I’m tired & wrung out but that’s just a result of the major symptom. My headache I’m sure is from medicine.


Posted on Facebook January 28, 2015
  • Spoke with my gastroenterologist. My CT scan looked good, just some minor inflammation. He believes I have post-infectious IBS. We're adjusting my medicine & seeing how it goes.


Posted on Tumblr February 18, 2015
  • Every time I speak with a doctor’s office lately about my GI issues I burst into tears & sob like crazy as soon as I’ve hung up the phone. I’m so wrung out, emotionally & physically. This whole experience is exhausting. I’ve been exhausted for three months now.
  • I’m trying to see a different doctor to get a second opinion that’s more than “it *might* be post-infectious IBS” & one that will hopefully be help to if not cure this then at least make it livable. 
  • I’m just so miserable lately & depression is getting harder to keep at bay.


Posted on Tumblr February 25, 2015
  • Going to see a new gastroenterologist. Freaking out. Part of me hopes for a more decisive diagnosis & action plan, but the rest of me is very discouraged by all that is gone on so far. Plus I’m sliding down the slope towards depression living with this illness. My doc just upped my meds to stave it off.



Posted on Tumblr & Facebook March 9, 2015
Mini health rant Because this is my life now
  • While I know it’s a good thing that my test results keep coming back normal or not showing major problems, it doesn’t change the fact that I’m incredibly ill & losing my mind due to it. I just want to get better. I hate this. I wouldn’t wish this IBS bullshit on my worst enemies.
  • My endoscopy results all came back normal showing only minor chronic inflammation similar to my colonoscopy & CT scan. I don’t want to find out something is seriously wrong with me but I do want to find out what the fuck is actually wrong with me.

Posted on Facebook April 15, 2015
  • Thank you health insurance system for not letting me get med I need because it's less than 30 days since last time it was filled. #bullshit


Posted on Facebook April 25, 2015
  • Got a stomach bug or something. Feel like I've been run over by a car. Looks like I'm not getting any chores done today.


Posted on Tumblr April 28, 2015
Health rant (from me? I know… shocking) TMI alert
  • I had a nasty stomach bug this weekend. Vomiting, mostly diarrhea - shaky, achy, the works. 
  • I have NO idea what caused it. My husband & I ate all the same foods. My car was in the shop so I was housebound for 2 days prior to the onset of the illness. I ate toast, crackers, ginger ale & vitamin water all weekend. Then I added applesauce & jello towards Sunday evening. No I am not pregnant. 
  • It lasted all weekend & while I was shaky & weak as a kitten Monday, it seems to have passed.
  • The weird thing was that I also had a racing, pounding heart & felt like I couldn’t breathe (weight on my chest) - which I usually get during my panic attacks. 
  • Could this have been a different sort of panic attack? I have no clue otherwise how I got sick. I’ve never had a panic attack like that. Ever. I’ve never gotten physically sick due to stress before. The added stressor in my life are a couple of big unexpected bills & my appt on Wednesday with my GI doc (IBS?? since November).


Posted on Tumblr June 4, 2015
  • Ever since I’ve been suffering from IBS, sometimes I get really resentful when I get hungry. Like, “are you fucking kidding me? Why put food in there when it’s just going to shoot right out the other end? Am I even getting any nutrients? What is the point of this shit?!”
  • I mean, I eat anyway, because I’ve never been a person that can just not eat or skip meals willy nilly - my blood sugar drops or my blood pressure drops. Shit drops & then I fall down. So I eat regularly. I just resent the need for it since I’ve been ill.


Posted on Tumblr June 27, 2015

EPIC TMI ALERT
  • I’m so fucking tired of living on the goddamn toilet. How can someone have so much shit in them? I’m literally full of shit!
  • Stupid fucking IBS!