Tuesday, September 1, 2015

UberGirl


Well, I'm an Uber driver now.




Captain Awesome is all spiffed up & looking sharp. 





Yesterday was my first day. I had two pickups. Both were college students. The first girl was also named Diana & when I was on my way to pick her up I saw a Dodge station wagon painted with Wonder Woman emblems. It was a sign!



My second pickup was later in the day. I took two college students from Wheaton College to Brandeis University. They were moving a bunch of stuff & because Awesome is a kick ass Element, it all fit. If I were in a sedan there would be no way I could have taken them. Because it was a long trip I earned a lot of money for it. Almost made driving home in rush hour traffic worth it!

I do wonder if there is a way to find out where the drop off is going to be. I'm off to Google to find out.

The only drawback I've noticed is that the Uber App & Google Maps are a serious drain on the phone battery. For my first pickup I attempted to use my Magellan GPS but it took me to the wrong location. So I will keep using my phone. I also have the Waze app but that is also a big battery drain. I'll keep a portable charger with me in the future. 

As a courtesy I have a cooler with bottled water that I take with me. Also since Awesome has suicide doors


... I get out & open the doors for the passengers. 

That was my first day as UberGirl. I'll keep you all posted. Wish me luck.

Thursday, August 20, 2015

Reflecting on Anxiety & IBS. Or: IBS woes (not gross or TMI/cringe-worthy! Promise!)

Stress causes anxiety. Anxiety can affect IBS. 

I am going to share with you that I suffer from anxiety. I realize there is still a stigma attached to mental health issues but I think it's important that more people actually talk about it to destigmatize the subject.
"Anxiety disorders are the most common mental illness in the U.S., affecting 40 million adults in the United States age 18 and older, or 18% of the population." (source).
40 million people is A LOT of people. To give you an idea of how many that is: 17% of the population of the US is black (source). There are more people suffering from anxiety disorders than there are black people in America.

I have been diagnosed with Generalized Anxiety Disorder, Panic Disorder and most recently, ADD (now commonly known as ADHD - but hyperactivity has NEVER been an issue for me, just the opposite. Although my brain is definitely hyperactive, my body is more lethargic.) I take medicine to manage my anxiety as well as learned coping skills. It is a never ending struggle to manage anxiety.

Regarding stress/anxiety & IBS

."If you do diagnostic interviews, what you find is that about 60% of IBS patients will meet the criteria for one or more psychiatric disorders," says Edward Blanchard, PhD, professor of psychology at the State University of New York at Albany. (source: WebMD)
There is no direct link that definitively states anxiety causes IBS, it's more that a high percentage of people who suffer from IBS also suffer from anxiety. They are linked but not causal. I find this fascinating as someone who has struggled with anxiety for years and only recently have been plagued by IBS.


My personal experience with IBS


My IBS has taken over my life since it first manifested in mid-November of 2014. I have had to stop searching for a steady job, I had to stop taking Krav Maga classes & exercising. I have become almost completely housebound. I am tethered to the toilet as I like to say. This situation has lead me to become extremely isolated and to be frank, lonely.

To give you an idea of what my life is like. Here's a rundown of my day:

During the night, I got up around 4 am & went to the bathroom. Then, I woke up this morning at 8:15 am with an urgent need to go to the bathroom (when I say "go to the bathroom", assume I mean number 2. I don't want to gross anyone out so I'm not going into details but unless I specify, assume some sort of bowel movement. Sorry TMI.). I'm writing this blog post around 1 pm & I've gone to the bathroom six times so far today. This is normal for me. This has become my normal.

In general, every day, for at least two hours after I wake up, I can't go anywhere or do anything because I find I have to go to the bathroom frequently and urgently. Like "gotta go, gotta go, gotta go RIGHT NOW." As the day progresses, the bathroom trips tend to become less frequent and far less urgent. I can hold it if I have to when running errands. I try to not to be away from my house or somewhere I'm familiar with the bathroom for longer than two hours. Some days I go all afternoon my daily tally ends up between 10-15 bathroom trips a day. Some days I have four or five hours in a row where I don't have to go at all. The bathroom trips don't start up again until the evening and are less frequent and less urgent.

The trouble is there is no way to predict which type of day I'm going to have. Will today be a good day where after my usual morning tribulations, I'm able to go run errands, go to appointments or have lunch with my parents? Or will it be one of the other ones, where I go to the bathroom at least once an hour all day?

---

I may have discussed this in a previous blog post but here is a brief history of the steps I've taken to deal with my IBS

After I saw my first gastroenterologist, he thought my pancreas numbers were a bit high so he put me on Creon, a pancreatic enzyme and to start taking a probiotic. This was in January. He also performed every test under the sun, blood tests, diagnostic tests (colonoscopy, CT scan, etc etc etc). I was then scheduled to see him again in May. MAY! Because he was a specialist, he was booked. After a month or so I decided I needed a second opinion and hoped to find a doctor I could see more frequently. Or at least one who wouldn't make me wait five months between appointments.

I saw my new gastroenterologist and she confirmed the first's diagnosis or Post Infectious IBS. She told me to keep taking Imodium regularly, to stop the Creon as it wasn't doing anything and suggested a cholesterol medicine that was known to, as a side effect, bulk up the stool (sorry, so gross, sorry). I started taking Cholestyramine but it gave me terrible heartburn and I already suffer from GERD. It was unbearable so after two weeks she stopped that medicine and put me on Lomotil, a powerful anti-diarrheal. At first I was taking one pill four times a day to little effect, I then went up to two pills four times a day but that was the maximum allowable dosage and she wasn't really comfortable with my taking that much for a long period of time. After a few weeks, it seemed the Lomotil was helping and that I could go back down to one pill four times a day. Now I take it three times a day, as my doctor has repeatedly suggested trying to take less but I've have been thinking about upping my dosage as I seem to be backsliding and not really getting a handle on my IBS, which is the whole point of these medicines.

Anyway, after being put on the Lomotil, at my next visit, she suggested I take a fiber supplement as another way to hopefully bulk up and then have to "evacuate less frequently" so now I take 2 fiber tablets in the morning and this week I've decided to start taking an additional tablet at bedtime.

Lomotil seems to help. Imodium shuts down my insides the day after I take it, which is odd but that is the pattern I've noticed since I've been tracking my medicine intake and bathroom visits. I still had a really active gut with cramping and occasional gas so my doctor prescribed me Bentyl, which is an anti-spasmodic. 

I've been reluctant to take Imodium regularly anymore because, while going the bathroom frequently is a hassle, I'd rather get it all out of my system rather than have a "shut down" like Imodium tends to produce (even if it is a day late).

I now take the Lomotil and Bently together three times a day. As I've stated I have been considering increasing my Lomotil because I'm so tired of having 12 bathroom trips a day on a regular basis.

Why am I telling you this? I can hear you, "get to the point!" Well, those of you who know me, know I tend to ramble a bit and off-topic tangents made up a lot of my conversations. So deal with it!

Well, life is stressful in general. My life is no more or less stressful than anyone else's other than it is happening to me. And that is what having anxiety or having IBS feels like. Life is happening to you, you are not living it, you are merely surviving. I don't want people to think that every single day is a struggle for me or that I'm also suffering from depression or a general malaise. But lately, IBS has added a serious burden to my coping methods I use to manage my anxiety. That's actually that's one big thing anxiety & IBS have in common - it not something you are magically cured from no matter what drugs you take, it is something you manage. You deal with it. You live with it. It doesn't just go away. It is a factor in your life every day.

With anxiety there are medications and coping methods and modalities individuals use to keep their anxiety from controlling their life. Because when my anxiety is spiking, as I put it, it feels like it is in control, not me. That I am merely reacting instead of acting. And with the IBS, I've been limited in my reactions because I'm housebound a lot of the time.

It feels like a I'm stuck in a hamster wheel, running in circles. My anxiety affects my IBS which in turn affects my anxiety which then affects my IBS. Repeat ad infinitum.

This is my life now.



Thursday, July 30, 2015

I've got (cabin) fever & the only prescription is more cowbell

I'm really going stir crazy with this IBS bullshit. 

I had a nice weekend, going to BBQs on Saturday & Sunday, & then paid for it by having "intestinal distress" (I'm trying to be gracious & ladylike here, we all know what I'm talking about) for two & a half days. My butt can't handle going 10+ times a day. It's not natural!

On top of that, or more accurately because of that, or causing that ... I don't even know anymore ... my anxiety has been through the roof this past month or so. 

Maybe that's a reaction to having been on pain meds for like a month & half dealing with a failed root canal & then the complications that resulted from a difficult tooth extraction. 

Maybe it's just my unusual weird seasonal affective disorder. I've never been diagnosed with it (I just call it that), since I seem to get it in August. Why? Who knows?! Maybe it goes back to the trauma of leaving my high school friends to go to college, maybe it's just my body reacts to the heat by spiraling into anxiety. All I know is every year around August I get in a funk.

Whatever, anyway, I've tried reaching out to my friends, only to realize, now that I'm older I don't have that many friends. Sure I have a large number of people I'm friendly with or I have a shared history with, but real close friends on whom I feel comfortable unloading (& who still live in my area as many friends have moved), I have maybe three. THREE!! Not including my husband. He's his own special category. And guess what? They are busy because they have jobs &/or kids & their own lives & I'm just sitting here at home slowly (or not so slowly) going crazy.

I've taken steps to deal with my isolation. I joined meetup.com & have joined a few groups in my area, in the hopes to meet new people that have shared interests. I'm not even necessarily looking for new friends (though I don't turn away new friends), I'm just looking for a place I can go once a month or so & talk to other people.

I'm also looking for work that is either extremely part time with constant bathroom access (can I put that in the cover letter?) or work at home opportunities (that aren't total scams). I'm also forcing myself to get back into audio engineering (as that was a costly failed experiment & I already feel like a disappointment & a failure regularly without seeing ProTools on my computer or my textbook on the shelf). I'm going to try to push myself in that regard. I need to, it's a huge issue between Pat & I that I got that certificate & then did nothing with it & just thinking about trying AE again makes my breath strained & shallow  but I must prevail. 

What sucks is that people think I'm smart (not a brag, people have said that to me) but when I hear that, my inner voice says, yes but not as smart as X or [vague generalities] are smarter. (That's the sucky part not that I'm smart)

I should (& I hate that word because it's a judgment word & I don't need help judging myself & coming up lacking) be smart enough to do what I put my mind to. It's just really hard for me to get out of my mind's way, if that makes any sense at all.

/end rant.

Sunday, July 19, 2015

IBS med & bathroom log

I have been keeping a medicine/bathroom log regarding my IBS-D. If there is interest I would be willing to share that. Basically I keep track of the medicine that I am taking for my IBS as well as a bathroom log keeping track of how often and what type of stools I am producing.

If this would be of help to anyone I would be willing to share it even though it is intensely private.

Feel free to comment so I can gauge if there's interest.

Saturday, July 18, 2015

A timeline of Post-Infections IBS...

Collection of posts from Tumblr & Facebook about my IBS (TMI warning), TW: Health issues


Posted on Facebook December 5, 2014

  • Entering week four of the stomach bug or GI virus or universe exacting karma on me. So tired of this.



Posted on Facebook December 13, 2014

  • I've decided to ask for a referral for a gastroenterologist. I can't deal with this anymore. I'm so miserable.



Posted on Facebook December 18, 2014

  • Status update on my health: not celiac. One possibility down...



Posted on Tumblr December 19, 2014

Personal Rant
  • So, this has nothing to with Tom Hiddleston or Benedict Cumberbatch or Sherlock or Sherlolly or Star Trek or Loki or any of the things I usually blog about so feel free to ignore, I just need to vent a bit.
  • A bit of TMI to follow:
  • I’ve been sick since mid November. At first I thought it was a horrible stomach bug, but I didn’t have nausea or vomiting, just… other stuff.
  • It’s been over a month & it’s not gone away or gotten any better.
  • I’ve had a bunch of blood work & antibiotics & seen specialists & had procedures & now I’m waiting for results. My blood work shows it’s not celiac. From what I’ve researched, I (in my complete lack of medical knowledge) think it’s ulcerative colitis or inflamed bowel syndrome/disease? I dunno. It could be something else entirely. I have to wait for results. 
  • This has been one of the worst experiences of my life. And I’ve had some doozies in the past.
  • I just want it to be over. I want something, anything, to fix it. I’m so tired of this. I’m so tired. I really can’t take much more of this. But I have no choice but to suffer through & carry on.


Posted on Tumblr December 22, 2014
  • I’m so sick, I can’t even drink wine. I think that’s super unfair. At least if I was drunk, maybe I wouldn’t care about being so fucking sick.


Posted on Facebook December 22 2014
  • People, I appreciate your asking for my wellbeing. I truly do. I love my friends & family. 
  • But please, stop being surprised when I say that I'm not better. I feel horrible enough without having to explain every time about how this process is ongoing. This isn't going to get better soon. The results aren't even back from my tests & procedures. Just wish me well & send me good vibes, thoughts & prayers (please).
  • I'm wicked sick. The end.
  • - I don't mean to complain, well yeah I do, but I'm exhausted from being sick & super short tempered as well. So apologies for my bitchy post.



Posted on Tumblr December 24, 2015
  • Trying to psych myself up to go to a family Xmas Eve get together in a couple of hours.
  • Still ill.
  • Just the idea of putting on a real bra & a nice shirt & jeans & boots is like way too much for me. Never mind putting on a little mascara so I look less drawn & exhausted, & well, ill.
  • If I could go as I’m dressed now, with my long sleeve Patriots Super Bowl Champ (XXXVI - it’s an old, super comfy shirt) t-shirt & my yoga pants & slippers, that would be so much easier. 
  • I might just do that.


Posted on Tumblr December 28. 2015

TMI - health issues & grossness. Sorry not sorry.
  • Opioid medicines cause constipation. Right now, I’d give my left arm for some constipation. It’s been a month & a half of serious GI issues. No answers yet. I’m so done with this.
  • If anyone has any leftover pain meds, I’d love to have them. Seriously.
  • I know nothing will come of this. God knows my docs won’t give me any - & I understand why… truly, people abuse them all the time. But I just want to be constipated for a week & give my butt a break.
  • Sorry for the bitching. I’m just exhausted by this illness.


Posted on Facebook January 2, 2015
  • This is my life right now, (the Bleachers song) I wanna get better. I'm so tired of being ill. And it's not just being sick. It's ill. I'm ill. We use the word 'exhausted' very casually but I am literally exhausted all the time from whatever is plaguing my body.


Posted on Facebook January 15. 2015
  • CAT scan today. Hope to find out what's going on with my insides. Stick a fork in me because I AM DONE.



Posted on Tumblr January 20, 2015

My Health Update
  • My CT scan showed only minor inflammation. My gastroenterologist believes I have post-infectious IBS. We’re adjusting my medicine & seeing how it goes. 


Posted on Tumblr January 21, 2015

I need to vent
  • Quick recap: GI issues since November. Colonoscopy: fine. Blood work: fine. Slight malabsorption indicated. Had CT scan last week, waiting on results, followup with GI doc next week. Taking pancreatic enzyme RX now & probiotics.
  • The Rx gives me a headache. It’s a listed side effect. It also says dizziness which I don’t really have but sometimes I do feel light headed even when I’m sitting down.
  • Almost everyday, my head aches or is all stabby stabby inside. Plus I’m still suffering, especially at night. I am so fed up with this. I need to feel better soon.
  • I’m going crazy.
  • My entire life is on hold. I’m on hiatus. All I do is read (which I love but lately my eyes have become itchy & watery & that makes reading less fun) & go to the bathroom.
  • ETA: I almost wish (but not really, because ugh, this is already awful) I had more symptoms because then it would be easier to figure out what this is. I’ve looked up Ulcerative colitis, IBS, lactose intolerance, gluten intolerance (celiac or non-celiac) & I’m like, nope, that’s not me. Like I’m not foggy headed or bloated or suffering from abdominal cramps or anything other than “intestinal distress”. Yeah I’m tired & wrung out but that’s just a result of the major symptom. My headache I’m sure is from medicine.


Posted on Facebook January 28, 2015
  • Spoke with my gastroenterologist. My CT scan looked good, just some minor inflammation. He believes I have post-infectious IBS. We're adjusting my medicine & seeing how it goes.


Posted on Tumblr February 18, 2015
  • Every time I speak with a doctor’s office lately about my GI issues I burst into tears & sob like crazy as soon as I’ve hung up the phone. I’m so wrung out, emotionally & physically. This whole experience is exhausting. I’ve been exhausted for three months now.
  • I’m trying to see a different doctor to get a second opinion that’s more than “it *might* be post-infectious IBS” & one that will hopefully be help to if not cure this then at least make it livable. 
  • I’m just so miserable lately & depression is getting harder to keep at bay.


Posted on Tumblr February 25, 2015
  • Going to see a new gastroenterologist. Freaking out. Part of me hopes for a more decisive diagnosis & action plan, but the rest of me is very discouraged by all that is gone on so far. Plus I’m sliding down the slope towards depression living with this illness. My doc just upped my meds to stave it off.



Posted on Tumblr & Facebook March 9, 2015
Mini health rant Because this is my life now
  • While I know it’s a good thing that my test results keep coming back normal or not showing major problems, it doesn’t change the fact that I’m incredibly ill & losing my mind due to it. I just want to get better. I hate this. I wouldn’t wish this IBS bullshit on my worst enemies.
  • My endoscopy results all came back normal showing only minor chronic inflammation similar to my colonoscopy & CT scan. I don’t want to find out something is seriously wrong with me but I do want to find out what the fuck is actually wrong with me.

Posted on Facebook April 15, 2015
  • Thank you health insurance system for not letting me get med I need because it's less than 30 days since last time it was filled. #bullshit


Posted on Facebook April 25, 2015
  • Got a stomach bug or something. Feel like I've been run over by a car. Looks like I'm not getting any chores done today.


Posted on Tumblr April 28, 2015
Health rant (from me? I know… shocking) TMI alert
  • I had a nasty stomach bug this weekend. Vomiting, mostly diarrhea - shaky, achy, the works. 
  • I have NO idea what caused it. My husband & I ate all the same foods. My car was in the shop so I was housebound for 2 days prior to the onset of the illness. I ate toast, crackers, ginger ale & vitamin water all weekend. Then I added applesauce & jello towards Sunday evening. No I am not pregnant. 
  • It lasted all weekend & while I was shaky & weak as a kitten Monday, it seems to have passed.
  • The weird thing was that I also had a racing, pounding heart & felt like I couldn’t breathe (weight on my chest) - which I usually get during my panic attacks. 
  • Could this have been a different sort of panic attack? I have no clue otherwise how I got sick. I’ve never had a panic attack like that. Ever. I’ve never gotten physically sick due to stress before. The added stressor in my life are a couple of big unexpected bills & my appt on Wednesday with my GI doc (IBS?? since November).


Posted on Tumblr June 4, 2015
  • Ever since I’ve been suffering from IBS, sometimes I get really resentful when I get hungry. Like, “are you fucking kidding me? Why put food in there when it’s just going to shoot right out the other end? Am I even getting any nutrients? What is the point of this shit?!”
  • I mean, I eat anyway, because I’ve never been a person that can just not eat or skip meals willy nilly - my blood sugar drops or my blood pressure drops. Shit drops & then I fall down. So I eat regularly. I just resent the need for it since I’ve been ill.


Posted on Tumblr June 27, 2015

EPIC TMI ALERT
  • I’m so fucking tired of living on the goddamn toilet. How can someone have so much shit in them? I’m literally full of shit!
  • Stupid fucking IBS!

Saturday, April 18, 2015

Imagine. A short story I wrote back in college. Set in 1995.

Imagine

As my friend and I walked through Central Park towards Strawberry Fields, John Lennon suddenly appeared at my side. My friend was talking but his voice faded into the background when John began to speak.

“Hullo,” he said, with a little wave of his hand. 

I turned and stared at him, flabbergasted. 

There was John Lennon, circa 1964, before his self-proclaimed “fat period,” standing before me, plain as day. I tried to think of something intelligible to say, but the words that blurted out of my mouth were,
“you’re dead!”

John laughed. “Of course, I’m dead. It’s the nineties, isn’t it?”

“But… but, why are you here?” I stammered.

“I came to talk to you. I noticed you from up there,” he stated, gesturing towards the sky.

“Up there, you mean, as in Heaven? Does this mean you believe in Heaven? What about the whole ’Imagine there is no heaven’ bit?” I said, sarcastically. ‘Did someone slip a hallucinogen in my water?’ I wondered.

“Well, after you die, where you go depends on what you believe.“ John ignored my sarcasm, giving me a wry grin.

“I see,” I said. “Well. Actually, no I don’t. But that’s okay, I like surprises.” “I counted on that, I came down here as a surprise,” John laughed.

“Well, uh, thanks, but you scared the hell out of me! Are you alone, or is Jim Morrison gonna jump out at me from behind a rock?” I asked.

“No, no, it’s just me. I thought I’d pop down for a bit, see the sights, have a cigarette. The usual.” John said.

“I see,” I said, even though I really didn’t. “Do you do this often? Or it this more of a one shot deal? Will I see you again after this or do you dissolve and men in white coats come and take me away?” My voice was thick with sarcasm.

“I’m not sure. It depends on how this trip goes. But don’t worry, you’re not crazy. Can’t say discussing this with anyone would be considered healthy, but it is real, “ he paused, “I’ve never done this before, y’know. This is a first for me too.”

“Well, that’s comforting! Okay, then… why me? Do I have a sign on top of my head that I don’t know about, inviting dead people to come chat with me? I mean, did you just look down see me walking and say, ‘hey. I’ll go scare the hell out of that bird’? Did you plan this? Understand, I love that I’m actually talking to you, but, I guess I’m more than a little freaked out.” I clamped my lips shut, embarrassed by my rambling.

“And so you should be. We dead people don’t do this often. If this happened to me when I was alive, I’d think I was one a bad trip. Not that you are,” he corrected himself hastily, “but that would’ve been my reaction.”

“Whew, I’d hate to think that someone in New York would ever do something as mean as that!! I said, smiling.

John laughed. “You remind me of me.”

“What? Like, I’m dead, too?” I asked, fearing the answer.

“No, you cover your true self with quips and comebacks,” he clarified.

“Well, thank you. I appreciate the comparison.” At that point, it dawned on me that my friend, Connor, was still talking to me and that my silence may worry him and that we were still walking towards Strawberry Fields. I thought I better try to rectify the situation. “Er, John, does Connor over here,” I gestured to my friend beside me, “have any idea what’s going on?”

“Nope,” John replied, “hasn’t a clue; he’s still talking to you.”

 “Ah, what should we do? I mean, I’ll have to talk to him eventually, don’t you think? Besides, he’s a really big fan, he knows a lot about you and The Beatles, more than me, I’d say. Not that I don’t love you and your music, he just has more info rattling around his brain than me, if you can believe it,” I said hurriedly.

John leaned over. “Relax, I’m here to see you. You intrigued me and so I came down,” he whispered in my ear. 

 I shivered and Connor spoke up, “Jackie, are you cold? We’re almost at Strawberry Fields, I think.” 

I snapped out of my reverie and turned to Connor, “Connor, um, do you think I could have a minute or so to myself. I’ll meet you there. You go on ahead.”

“I don’t know, are you sure? Are you okay?” Connor asked, sounding concerned.

“I’m fine, really. Go on. I’ll be there soon.” I squeezed his arm and watched him walk away.

I sat down on a bench and put my head in my hands. “Jackie, get a grip! Next thing you know, a young Micky Dolenz will show up to serenade you,” I whispered to myself, “hey that’d be kind of cool.”

“I can arrange that, you know. Sleight of hand, really.” Startled, I looked up to see John sitting beside me.

“You know, if I were you, I’d go by the name Jack. Think about it, how many girls do you know named Jack?” John laughed over his own comment.

“Oh, Christ, you’re real,” I muttered. “First of all, don’t sneak up on me like that. Second, do not call me ‘Jack’ and third, I’d be awful worried if you were me… I just can’t believe you’re real.” I finished, with a sigh.

“Jack, I’m as real as a man who’s been dead for fifteen-odd years can be!” John chuckled at my reaction.

“You’re very cavalier about your death, aren’t you? I mean, I don’t know if I could be so blasé about it,” I turned to to look into his eyes.

John averted his gaze and spoke quietly, “well, I’ve had a long time to think about it and there’s nothing I can really do. I’d like to be with Sean and Julian and Yoko, but, I mean, I can’t. There’s nothing I can do.”

“But, wait a minute, if you’re here with me, why can’t you be with them?” I asked.

“Leaving them would be too hard. I wouldn’t want to put them through all that again. Besides, I can look in on them and they know I’m always there for them. So, in a way, I’m still here, you know?” John looked directly at me.

“That’s very admirable, I don’t know if I’d be so strong,” I replied. 

“It’s not a choice. I have to do this. I have no choice. I had no choice!” John nearly shouted.

“Relax! Look, I’m sorry, I shouldn’t have brought up this subject. I’m sorry!” I pleaded. 

John reached over and took my hand. Amazed, I looked down and stared at our intertwined fingers.

“Neat trick,” I sighed, “do other people see you or am I holding hand with the air?”

“No, no, other people see me. I just don’t look like me to them. They only see a couple holding hands. People today only see what they want to see.” John stated.

“Wow. That’s profound. No wonder why you were the voice of a generation.” I said. 

“Rubbish! I hate that phrase!” John said fervently. 

“Whoa! Calm down. I didn’t coin it. I just repeated it!” I sounded defensive, even to myself.

John grumbled under his breath before responding, “I know, it’s kind of refreshing to talk to someone your age who wasn’t around during all the madness.” 

“Yeah, you probably didn’t get much of a chance when you were alive. People my age were three when you died.” I shook my head and laughed softly at the absurdity the situation.

“Don’t I know it! It’s kind of odd if you think about it… so I try not to.” John said with a wry grin.

“Er… Let’s change the subject? I mean… This is so surreal, but since I have you here… I’d like to ask you about drugs. You don’t have to answer if you don’t want but if you do, just be honest, okay?” I asked.

“Alright, I’m known for my honesty, you know,” John smiled.

“That’s not all you’re known for,” I retorted, “anyway, I don’t really know what I want to ask you. I mean, why did you get into drugs? Wait, that’s really vague… Am I making any sense? Oh God.” I finished, a blush stained my cheeks.

“Straight to it, huh? Well, I think I understand what you’re getting at,” John replied. “Let’s see, I started smoking marijuana when Bob Dylan introduced us to it. I liked it a lot. I loved the way it made me feel. We all did, especially Paul.”

“He’s still into it, if rumors are to be believed.” I interjected.

“Yeah, I’m not surprised. It was his favorite pastime,” John declared, a fond look on his face as he thought about his former bandmate and songwriting partner.

“So, um, I read that you took pills before pot and then LSD later, is that right?” I asked.

“Right, in Hamburg, we took speed just to stay awake on stage!” John answered.

“Yeah, that toilet seat around your neck would’ve been extra heavy if you were half asleep, I suppose.” I grinned.

“Cheeky monkey!” John grinned. “So you heard about that, eh? Huh. But you’re right, those pills kept us going. God, Hamburg was hell.” He shook his head, as if to clear his thoughts. “Next question.”

“Okay,” I replied, “what about your experiences with LSD? What got you into that? And why?”

John thought for a moment before he replied, “I scarcely remember the first time I did it. But it was so wild! It’s like walking around in the dark your whole life and then someone suddenly turns on the light. You’re blinded by the beauty.” A faraway look flickered across his face and I found myself lost with him in a world filled with fantastic images and psychedelic colors. I looked to the sky, and it was as if a hurricane of colors converged above the city.

“It must have been unreal,” I said, gazing at the color show in the sky. 

“Yes, for a while it was,” John replied, “I dropped acid like it was candy and wrote songs unlike any I’d written before. But sooner or later, everything changes, and what was once beautiful becomes distorted, ugly and black.”

I looked up and say the grey pallor the sky had taken, then, suddenly, as John spoke, the darkness disappeared and the crystal blue sky returned. 

“That’s when I stopped dropping LSD and began to meditate… Oh, and then I was on heroin with Yoko, but I don’t want to talk about that.”

“Wow, I wish I could say something meaningful, even something intelligent as a response, but ‘wow’ is all that comes to mind.” I said, awestruck.

“I know, it’s something that can only be experienced, but I don’t suggest it now. The drugs are different. Back in the sixties, they were pure but now they are all laced with one thing or another.” John warned, a serious look on his face. It felt like I was getting a lecture from a cool uncle.

“Oh, don’t worry about me. I’m not into that stuff. honest!” I splayed my hands out in front of me, in what I hoped was a gesture of sincerity. “But, damn, this is starting to sound like an interview and that’s not what I want. I just… I love talking to you and experiencing vicariously even a small part of your life. This whole thing is just so incredible. I don’t know what to think, much less say.” I said. I felt silly I was talking to a dead man. I mean, not in my mind, either, but in the middle of Central Park! Weird!

I voiced my inner musings. “John, this situation is insane! I still can’t believe I’m sitting here talking to you! I mean, really, is this happening? Am I hallucinating? Help me understand,” I pleaded.

“I’ll do my best but it’s not like I have a manual. All I know is I am really here. This is really happening. I don’t truly understand how and I definitely don’t know why … yet, here I am.” John made an expansive gesture encompassing his entire body.

I shook my head. “What can I say? This whole thing is ludicrous. Every logical bone in my body is telling me this can’t be happening. But, in my heart, I know it is.”

“Do you mind if I ask you a question?” 

“Is that it? Then no,” I grinned.

“Har-har, you slay me,” John joked. The smile fell off my face.

“That’s not funny,” I said, quietly.

“I’m sorry, I know,” John said and quickly sobered, “but what I want to know: why are you going to Strawberry Fields? What’s your motive?”

“I don’t know. Honest. I mean, it’s probably a real tourist-y thing to do, but, I just feel drawn there. It’s as though it’s something I have to do, you know.” I said, softly.

“I’ve looked down on it quite a bit, and it amazes me how many people still go. I love to listen to to what people say when they’re there. One guy, he said I was ‘the talented Monkee’! Isn’t that a giggle?” John chuckled.

“Hey, hey, hey, hey, hey! I like The Monkees! No, correction: I love The Monkees! Don’t know them or you can go right back up, okay?” I burst out.

“I wasn’t knocking them! I just found it amusing. That’s all. I like The Monkees! They were hysterical! Calm down.” John bumped into shoulder into mine.

“I’m sorry, I’m not usually that quick to jump down someone’s throat, I’m just a little on edge right now,” I apologized.

“You didn’t really answer my question. Look deep into your soul for the answer, I want to know,” John said.

“I guess, I feel like if I go, I’ll be closer to you. I mean, this is all new for me. I wasn’t around in the sixties. I didn’t have a lasting relationship with The Beatles growing up. I wasn’t aware when you dies. I feel like I need to go, I need to say goodbye, or I’m sorry. I don’t know. You see, when I was growing up, I watched The Monkees and I knew a group called The Beatles inspired their show. I’ve loved the Monkees, forever it seems, but I’ve only loved your music for a relatively short time. So, all the emotions surrounding your years with the group, your marriage, and your death, especially, are all new to me. I need to grieve.” I took a steady breath, and looked at John.

“I understand,” John said.

“Do you? Can you? Did you know there was a documentary about The Beatles that came out a year or two after you died? It was called ‘The Compleat Beatles’. Well, at the end, they show a picture of each of you and say where you are now. Your picture was last, and they said that you were assassinated, which I knew. But, when I saw it written on the screen, I burst into tears. I cried so hard because it’s just so unfair. Why you? Why did it have to happen? I just don’t understand.” My shoulders shook with silent sobs. John reached over and put his arm around me and pulled me to him.

“I know. I know you cried, I think that’s part of the reason I was drawn down here to you. I don’t understand it either and, believe me, I know it isn’t fair. There are no words that can be said… by me… you… anyone that can ease the pain we all feel. Trust me, I know.”

“John, I wish I could stay here talking forever, but I guess there will be time for that someday. Right now, I’d like to go with Connor and visit Strawberry Fields for a while. To more, to grieve, and now, to remember. Will you join me?” I asked.

“I’d like to, but, I think it’s time for me to go back. I don’t know if I can ever do this again, but I want you to remember, I’ll always be with you,” John said, standing.

I also stood up and leaned over to kiss him on the cheek. “Thank you for this. Those words may sound hollow, but they come form the heart. Thank you, John,” I whispered.

“Thank you, Jackie,” John replied.

Tears filled my eyes as I turned to walk towards Strawberry Fields and Connor. I felt a hand on my shoulder and I quickly turned but there was no one there. He was gone.

As I walked down the path, I raised my eyes to the sky. “Thank you,” I whispered. 

I looked around and found Connor in the crowd. He noticed me and waved. I waved back and as I walked along, I heard John’s voice whisper: 

“Your welcome, always… Jack.”


© Diana Shelton (written in 1995 - All Rights Reserved)